PharmaVOICE - 
April 2019
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In Every Issue
Letter from the Editor
The Patient Inside Us All… At some point in our [...]
By

Taren Grom, Editor

Upfront
Amgen Supports STEM Education Amgen has become a pilot partner [...]
By

PharmaVOICE Staff

HealthTech
Ochsner Health System and Pfizer Partner to Develop Innovative Models [...]
By

PharmaVOICE Staff

Artificial Intelligence
Study: What Consumers Think About AI Trend Watch: From robots [...]
By

PharmaVOICE Staff

Last Word
From Patient to Advocate Donna Cryer, President and CEO of [...]
By

Donna Cryer, President and CEO, Global Liver Institute

On The Cover

Patients Are Waiting…
Patient-focused initiatives are taking hold throughout the industry from R&D through commercialization, yet there is still room for improvement. Progress is being made to include patient insights and perspectives throughout the life-sciences more holistically. Companies are engaging patients to weigh in on protocol development for clinical trials, to help refine corporate thinking and culture, understand [...]
By

Taren Grom, Editor

Features

Patient-Based Culture
Companies need to cultivate patient-centricity from the inside out. Not much more than five years ago, UCB was one of the first pharma companies to bring patient centeredness deep into its culture, moving away from the traditional product-based model driven by revenue growth and sales toward the goal of creating value for each and every [...]
By

Robin Robinson

The Evolving Role of Patient Advocates
Patient advocacy groups have long had relationships with pharma, and now, individual patients are also sharing their voices and their power. While pharma has long had relationships with advocacy organizations, there is a growing wave of individual patients who are willing to speak up, be engaged, and provide insights to help the industry identify opportunities [...]
By

Robin Robinson

Children on the Frontline: the Toll of Rare Diseases
Parents are the strongest advocates for their children suffering with rare diseases, pushing researchers, companies and regulatory authorities to do more to save their loved ones. For the 350 million people worldwide battling with a rare disease, the impact on their day-to-day lives is profound. This statistic is exponentially more poignant because half of these [...]
By

Kim Ribbink

Patient-Focused Drug Development
Biopharma companies and regulators are working to put the patient truly at the center of drug research and development. Empowered patients are redefining the healthcare environment on their own terms. Today, patients and advocates are playing a more central and proactive role in managing their own healthcare. This shift is reshaping traditional models of drug [...]
By

Denise Myshko

Patients and Regulatory Support
Regulators are working to make sure patients have a seat at the clinical trial table. The Food and Drug Administration has been instrumental in the movement toward patient-centric clinical trial initiatives and driving these initiatives forward is the future of trial development. In recent years, the FDA has accelerated its public support of patient involvement [...]
By

Denise Myshko

The Caregiver Gap
Caregivers are often an integral part of the care team and are involved in everything from medication choice to adherence. Caregivers are significant players in the healthcare ecosystem and, for many individuals, a necessary part of managing an illness or chronic condition. Caregivers provide an estimated 0 billion worth of free care annually — three [...]
By

Denise Myshko

Patient Journeys
Putting the patient at the center requires understanding the whole person, not just his or her illness. Telling a patient’s story through his or her odyssey can be a powerful message. By all accounts, mapping a patient journey is never a straight line leading from point A to point B, and requires an understanding that [...]
By

Taren Grom, Editor

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