Patient: Page 18


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    Upfront

    Alnylam Launches Animated Video Series for Kids with PH1 In September, Alnylam launched PH1 of a Kind, a new animated video series for children living with primary hyperoxaluria type 1 (PH1). The four-part video series stars Isabelle, Luuk, Asha, and Will — kids from around the world who have bee...

    By PharmaVoice Team • Oct. 1, 2019
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    SHOWCASE: Patient Solutions: Engaged Patients Driving the Solutions Market

    Across healthcare, there is a growing move toward patient engagement and patient-centered care. Technology and services companies in the healthcare space are more keenly focused on patient-centric initiatives and solutions as the healthcare model shifts from fee-for-service to value-based care. I...

    By PharmaVoice Team • Oct. 1, 2019
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    Trendline

    Commercialization, marketing and social media

    As the pharma industry stares down a historic patent cliff, macroeconomic headwinds and challenging R&D costs for increasingly complex medicines, nailing the launch of new medicines has become increasingly critical. 

    By PharmaVoice staff
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    Are You Ready for Patient Services 2.0?

    Today’s patients are far more engaged than the previous era of “doctor knows best." Their voices are amplified through digital, social and popular media, from news programs to Facebook posts, blogs, podcasts, YouTube videos, and documentaries. Powered by the technology they use in their daily liv...

    By Bhaskar Sambasivan • Oct. 1, 2019
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    Create Connections. Make a Difference.

    Can engagement in online health communities (OHC) improve the quality of life for members while simultaneously having a positive impact on quality of healthcare as a whole? We think so. When it comes to living with a chronic health condition, the challenges can be numerous and disrupt life in man...

    By Amrita Bhowmick • Oct. 1, 2019
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    Patient-Centric Approach to Improve the Patient Experience

    Access to patients continues to be a key challenge for the industry and with 37% of sites under enrolling and 11% of sites failing to enroll a single patient, things aren’t getting any better. If sponsors and CROs continue to react to challenges as they arise rather than planning for success up f...

    By Joyce Moore • Oct. 1, 2019
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    Caring for the Whole Patient

    When it comes to supporting patients, the mantra is “put the patient first" or “put the patient at the center of the solution" — rightfully so. Successful marketers will always put the prime audience at the center of all programs, and in order to put the “patient first" or “at the center," it mak...

    By Peter Von Bartheld • Oct. 1, 2019
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    Access Services Programs Affect Product Performance, and Your Brand and Company Reputation

    “Repetition penetrates the dullest minds" was a common line I used to hear regularly from a former boss when I was a wet behind the ears product manager. The media’s consistent focus on prescription drug prices and the rising cost of healthcare has penetrated every news channel and stakeholder in...

    By Michael Zilligen • Oct. 1, 2019
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    Commanders & Chiefs

    These forward-thinking leaders are inspiring their teams to achieve far-reaching goals and strategically positioning their companies for success as they navigate complex industry challenges. Committed. Kind. A Celebration of Leadership Sharon Callahan Titles and Companies: CEO, TBWA\WorldHealth a...

    By PharmaVoice Team • Aug. 1, 2019
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    Change Agents

    These forward-thinking individuals are disrupting the status quo and setting the strategic direction for their companies to capitalize on the opportunities that will shape the future of the healthcare ecosystem. Intuitive. Strategic. Solutions-Oriented, Patient-Focused Amy Bybee Title: VP, Strate...

    By PharmaVoice Team • Aug. 1, 2019
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    Patient Advocates

    Patient-centricity is all the buzz, but for these leaders patients have always been at the center of everything they have done and continue to do. Centered. Mindful. Transforming Medical Affairs Across the Industry Ramin Farhood, Pharm.D. Title: VP, Head of Global Medical Affairs Company: AveXis,...

    By PharmaVoice Team • Aug. 1, 2019
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    Clinical Experts

    These clinical development experts are redefining clinical operations to increase efficiencies, reduce costs and timelines, and improve the safety profiles of bringing new medicines to patients. A Rare Passion for Patients Energetic. Unrelenting. L. Mary Smith, Ph.D. Title: Senior VP, Clinical R&...

    By PharmaVoice Team • Aug. 1, 2019
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    Charting Their Own Course

    Every entrepreneur’s journey is as unique as he or she is. The common denominator:  a passion to improve the lives of patients. Risk-takers, disrupters, change agents, visionaries — more than a dozen industry entrepreneurs discuss what it takes to make the bold step to create something new and th...

    By PharmaVoice Team • June 1, 2019
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    Getting Personal With Precision Medicine

    Research on biologics, the study of the human genome, and the development of precision diagnostic tools and software have led to new hopes for the development of promising precision medicine. At the same time, the life-sciences commercial sector is still struggling with the challenges of payment ...

    By PharmaVoice Team • May 1, 2019
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    Speak Out

    What do patients really want from pharma? Today, most of us have become digital natives—seamlessly integrating mobile experiences into our daily lives. Many of us are also patients and caregivers. This represents an opportunity for pharma to offer mobile-first approaches to engage healthcare cons...

    By Hoss Sooudi • May 1, 2019
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    Letter from the Editor

    The Patient Inside Us All… At some point in our lives we have been or will be a patient…and yet we are so much more. We are also parents, aunts, uncles, caregivers, in addition to the roles we embody as leaders in the healthcare ecosystem. We asked the patients interviewed for this second annual ...

    By Taren Grom • April 1, 2019
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    Last Word

    From Patient to Advocate Donna Cryer, President and CEO of the Global Liver Institute, talks about how she channeled her personal experience as an IBD and liver transplant patient into professional advocacy. PV: Tell us about your journey as a patient. Cryer: This is the 25th anniversary of my li...

    By Donna Cryer • April 1, 2019
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    Patients Are Waiting…

    Patient-focused initiatives are taking hold throughout the industry from R&D through commercialization, yet there is still room for improvement. Progress is being made to include patient insights and perspectives throughout the life-sciences more holistically. Companies are engaging patients ...

    By Taren Grom • April 1, 2019
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    Children on the Frontline: the Toll of Rare Diseases

    Parents are the strongest advocates for their children suffering with rare diseases, pushing researchers, companies and regulatory authorities to do more to save their loved ones. For the 350 million people worldwide battling with a rare disease, the impact on their day-to-day lives is profound. ...

    By Kim Ribbink • April 1, 2019
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    Patients and Regulatory Support

    Regulators are working to make sure patients have a seat at the clinical trial table. The Food and Drug Administration has been instrumental in the movement toward patient-centric clinical trial initiatives and driving these initiatives forward is the future of trial development. In recent years,...

    By Denise Myshko • April 1, 2019
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    The Caregiver Gap

    Caregivers are often an integral part of the care team and are involved in everything from medication choice to adherence. Caregivers are significant players in the healthcare ecosystem and, for many individuals, a necessary part of managing an illness or chronic condition. Caregivers provide an ...

    By Denise Myshko • April 1, 2019
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    Patient Journeys

    Putting the patient at the center requires understanding the whole person, not just his or her illness. Telling a patient’s story through his or her odyssey can be a powerful message. By all accounts, mapping a patient journey is never a straight line leading from point A to point B, and requires...

    By PharmaVoice Team • April 1, 2019
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    Red Zone: To Gain Competitive Advantage, Learn Your ABCDs

    Understanding and staying engaged with patients throughout their treatment and wellness journey is a primary focus of the entire life sciences industry. The benefits are clear: • Patients’ trust in the therapy and its ecosystem grows • Longitudinal data on patient progress provides evidence for v...

    By Sriraman Nagarajan • Jan. 1, 2019
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    Last Word

    In Her Shoes: Understanding the Female Patient Experience Elizabeth Bolgiano, Executive VP, Chief Human Resources Officer at AMAG Pharmaceuticals, discusses the company’s efforts to imagine “walking a mile" in its female patients’ shoes as they seek care for sexual health-related conditions. PV: ...

    By Elizabeth Bolgiano • Nov. 15, 2018
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    Entrepreneurs

    Frank Powers For Raising the Creative Bar Title: Managing Partner Company: Elevate Healthcare Education: Bachelor of Science in Business and Finance, Mount St. Mary’s University; Master of Business Administration, Philadelphia University Family: Tara Leigh, he will forever be grateful for the unw...

    By PharmaVoice Team • Aug. 1, 2018
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    Patient Advocates

    Anne Quinn Young For Pushing MMRF’s Mission Forward Title: Senior VP, Marketing and Communications Company: Multiple Myeloma Research Foundation Education: BA, Dartmouth College; MPH, Mailman School of Public Health, Columbia University Family: Husband of 17 years, Brandon; daughters Keira, Lara,...

    By PharmaVoice Team • Aug. 1, 2018