Patient: Page 18


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    HBA's Rising Stars and Luminaries

    The HBA’s 2020 Rising Stars and Luminaries provide their insights on the trends they are tracking that they believe will impact the industry in the future. In 2020, the Healthcare Businesswomen’s Association is honoring more than 140 extraordinary women representing all facets of the life-science...

    By PharmaVoice Team • April 1, 2020
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    Letter from the Editor

    The patient experience We are excited to publish the third annual Patient Voice issue. This special publication is dedicated to raising the voice of patients and sharing their insights on topics ranging from drug discovery and development through commercialization. We also have tapped nearly 100 ...

    By Taren Grom • March 1, 2020
  • Trendline

    Oncology R&D

    Cancer research remains a prime focus for the industry and often leads to pharma’s most impactful breakthroughs.   

    By PharmaVoice staff
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    Upfront

    Teva and Direct Relief Partner to Bring Cancer Medicines to Africa Global HOPE (Hematology-Oncology Pediatric Excellence), a program of Texas Children’s Hospital, Teva Pharmaceutical Industries, and Direct Relief are partnering to provide access to medications in sub-Saharan Africa, where a major...

    By PharmaVoice Team • March 1, 2020
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    The Power of Patients

    Patient engagement is permeating all spheres of the healthcare ecosystem. On the cover… This month’s cover image is a self-portrait painted by Casey Ford, age 19, who has a rare connective tissue disorder, which is characterized by under-developed, absent, or misplaced/misaligned kneecaps in newb...

    By Taren Grom • March 1, 2020
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    Patient Gallery

    Last year, we were honored to feature the art work of Max Schill, now 11, who remains an active patient advocate, and who helped pass the 21st Century Cure Act. We are excited to continue this tradition with this year’s original artwork by 19-year-old Casey Ford. To expand the patient gallery we ...

    By Robin Robinson • March 1, 2020
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    Driving Patient Engagement

    A cultural shift throughout pharma is putting patients squarely in the middle of strategic decision-making. Pharmaceutical companies should take a cue from patient advocacy groups to drive patient engagement, and even partner with those advocacy organizations to create better patient experiences ...

    By Taren Grom • March 1, 2020
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    Patient Stories Can Bridge the Gap Between Pharma and Patients

    Patients are sharing their stories in an effort to educate other stakeholders, and the pharma industry is using that knowledge sharing to improve on messaging and patient interaction. Patient stories are being used to illustrate organizations’ brand, services, and successes. Hospitals are using t...

    By PharmaVoice Team • March 1, 2020
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    Patient-Enhanced Drug Discovery and Development

    Patients are uniquely positioned to inform the understanding of the therapeutic context for drug development and evaluation. In other industries, it would seem odd not to get input from the end user of a product throughout the development stages. But it seems that pharmaceutical companies — some ...

    By Taren Grom • March 1, 2020
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    Bringing the Patient Voice into Clinical Trials

    In an effort to put patients at the center, pharmaceutical companies are starting to gather input from patients earlier in the clinical trial process. Amid growing recognition that patients need to be part of the decision-making process in order to increase the effectiveness of the study, the pha...

    By PharmaVoice Team • March 1, 2020
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    Building Advocacy Partnerships

    The relationship between pharma companies and advocacy groups is important for all stakeholders but more needs to be done to create truly interactive, transparent relationships. The most effective approach for pharma companies to truly be patient-minded is a combination of engaging with patients ...

    By PharmaVoice Team • March 1, 2020
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    Patient Relationships: Physicians and Payers

    Patients are taking an active role in developing relationships with all stakeholders within their healthcare environment. Over the past several years, the relationship between pharma companies and patients has garnered much of the industry’s attention. But as patients become more empowered, engag...

    By Robin Robinson • March 1, 2020
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    A Different Kind of Real-World Evidence: The Key Role That Patient-Provider Dialogue Research Can Play

    All roads in healthcare lead to and from the medical visit. Well, maybe not all roads, but nearly all. The medical visit is central to the overarching healthcare structure and it is driven by the dialogue between patient and provider. The healthcare data and research landscape has been changing s...

    By Katy Hewett • March 1, 2020
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    Patient Heroes

    The definition of a hero is a person who is admired for courage, outstanding achievements, or noble qualities. There is a massive demand for patient-engagement solutions, with predictions that the market for such solutions will reach $30.36 billion by 2026. Patient needs are not only supported by...

    By PharmaVoice Team • March 1, 2020
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    Making the Patient an Extension of the Team

    The concept of patient-centricity is well embedded throughout EVERSANA and is intrinsically tied to helping the agency’s clients achieve their goals. Kristin LaBounty Phillips believes that the entire agency — with a unified commitment to quality in addressing patients’ needs — embodies the conce...

    By Kristin LaBounty Phillips • March 1, 2020
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    Breaking Down Barriers to Bring Patients Equal Access to Top-Quality Care

    Patients Always The term “patients first" is not enough, rather it’s “patients always" because patients are our North Star through every stage of development — from discovery to clinical trials to approved treatment. Eve Dryer Executive Director, Patient Advocacy Retrophin All patients should hav...

    By Eve Dryer • March 1, 2020
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    Clinical Educators Provide Support Along the Whole Patient Journey

    Team Power The teams of clinical educators at VMS BioMarketing are driven to help patients on a one-to-one basis to manage chronic illnesses — in the field or on the phone each day. Taking A Step-Wise Approach to clinical education There is one club that no one wants to join, but for those who wo...

    By Clinical Educator Teams • March 1, 2020
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    Unraveling Data Ownership

    Amid ongoing concerns over data privacy and how patients’ data is used, who owns the data is both a crucial and complex question. Just who owns a patient’s data? It’s a question that is fraught with complications due to the sensitive nature of the information. Data has been described as the most ...

    By Kim Ribbink • Jan. 1, 2020
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    Wearing Your health: The Case for Smart Clothing

    As the wearable market continues to expand, the potential for smart clothing to monitor and manage health is breaking new ground. The market for wearables is continuing to grow as more companies enter the space and as more and more consumers acquire devices. According to IDTechEx, the market for ...

    By Kim Ribbink • Nov. 19, 2019
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    Patient Care: Treatment to Cure

    Moving the industry from a focus on treatment to a focus on prevention will require data, new financial incentives, and a change in how healthcare is delivered and paid for. Today, the U.S. healthcare system is a collection of disconnected components: health plans, hospital systems, pharmaceutica...

    By PharmaVoice Team • Nov. 19, 2019
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    Can Healthcare Be Equitable?

    Addressing disparities in health is key to achieving progress toward health equity, but in a complex environment how can these goals be achieved? According to the World Health Organization, equity is “the absence of avoidable or remediable differences among groups of people." From a healthcare pe...

    By Kim Ribbink • Nov. 19, 2019
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    Technology Plus Science: New Company Model?

    We asked a variety of experts what would happen if Apple, Amazon, Google or another big technology company bought a pharma company? Our experts are divided on the likelihood of this happening, but if it did, they say it would be transformational. For more than a decade we have been discussing the...

    By Robin Robinson • Nov. 19, 2019
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    Upfront

    Alnylam Launches Animated Video Series for Kids with PH1 In September, Alnylam launched PH1 of a Kind, a new animated video series for children living with primary hyperoxaluria type 1 (PH1). The four-part video series stars Isabelle, Luuk, Asha, and Will — kids from around the world who have bee...

    By PharmaVoice Team • Oct. 1, 2019
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    SHOWCASE: Patient Solutions: Engaged Patients Driving the Solutions Market

    Across healthcare, there is a growing move toward patient engagement and patient-centered care. Technology and services companies in the healthcare space are more keenly focused on patient-centric initiatives and solutions as the healthcare model shifts from fee-for-service to value-based care. I...

    By PharmaVoice Team • Oct. 1, 2019
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    Are You Ready for Patient Services 2.0?

    Today’s patients are far more engaged than the previous era of “doctor knows best." Their voices are amplified through digital, social and popular media, from news programs to Facebook posts, blogs, podcasts, YouTube videos, and documentaries. Powered by the technology they use in their daily liv...

    By Bhaskar Sambasivan • Oct. 1, 2019
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    Create Connections. Make a Difference.

    Can engagement in online health communities (OHC) improve the quality of life for members while simultaneously having a positive impact on quality of healthcare as a whole? We think so. When it comes to living with a chronic health condition, the challenges can be numerous and disrupt life in man...

    By Amrita Bhowmick • Oct. 1, 2019