Patients as Partners: Imagining the Future of Rare Disease Therapies

Sponsored by: Global Genes

Wendy White, Chair, Global Genes
MK Shean, Drug Development Consultant, Quality Forward
Pat Furlong, Founding President and CEO, Parent Project Muscular Dystrophy (PPMD)
Ben Lenail, Co-founder, Board member, Business Strategy Officer, ALD Connect

Wednesday - May 23, 2018 / 1:00pm EDT
Free Event

This is the first installment of our new webinar series, Healthy Opinions. It is now available to watch any time as an OnDemand resource.

Healthy Opinions covers important topics in the life sciences industry. We feature top thought leaders and experts in a panel format. All panelists participate using their webcam.

The focus of this episode is rare disease. We’ll cover some of the hurdles and challenges, as well as some possible solutions, and even take a peek into the future. At the end of the discussion, we have a Q&A session and address questions sent in from industry professionals.

About the Sponsors

Global Genes® is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon®. What began as a grassroots movement in 2009 , with just a few rare disease parent advocates and foundations , has since grown to over 500 global organizations.

For more information please visit

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