April 2019

Letter from the Editor

April 1, 2019

The Patient Inside Us All… At some point in our lives we have been or will be a patient…and yet we are so much more. We are also parents, aunts, uncles, caregivers, in addition to the roles we embody as leaders in the healthcare ecosystem. We asked the patients interviewed for this second annual Patient […]

Upfront

April 1, 2019

Amgen Supports STEM Education Amgen has become a pilot partner of STEMissaries, along with Science from Scientists (SfS), a nonprofit dedicated to empowering youth to remain competitive in emerging STEM fields. Together, Amgen, Amgen Foundation, and SfS are partnering on the STEMissaries program to support the positive impact that a hands-on approach to science-related curricula […]

HealthTech

April 1, 2019

Ochsner Health System and Pfizer Partner to Develop Innovative Models for Clinical Trials Trend Watch: Technologies Continue to Enhance Clinical Trial Experience and Efficiency Ochsner Health System, Louisiana’s largest non-profit academic healthcare system, and Pfizer have entered into a multi-year strategic alliance to develop innovative models for clinical trials. Through this partnership, Pfizer and Ochsner […]

Artificial Intelligence

April 1, 2019

Study: What Consumers Think About AI Trend Watch: From robots to analytics, AI is being used for better patient care and engagement A study commissioned by Pegasystems, “What consumers really think about AI: A global study,” revealed consumers are open to the use of AI when it comes to their health: 65% of consumers agree […]

Last Word

April 1, 2019

From Patient to Advocate Donna Cryer, President and CEO of the Global Liver Institute, talks about how she channeled her personal experience as an IBD and liver transplant patient into professional advocacy. PV: Tell us about your journey as a patient. Cryer: This is the 25th anniversary of my liver transplant, and it is the […]

Patients Are Waiting…

April 1, 2019

Patient-focused initiatives are taking hold throughout the industry from R&D through commercialization, yet there is still room for improvement. Progress is being made to include patient insights and perspectives throughout the life-sciences more holistically. Companies are engaging patients to weigh in on protocol development for clinical trials, to help refine corporate thinking and culture, understand […]

Patient-Based Culture

April 1, 2019

Companies need to cultivate patient-centricity from the inside out. Not much more than five years ago, UCB was one of the first pharma companies to bring patient centeredness deep into its culture, moving away from the traditional product-based model driven by revenue growth and sales toward the goal of creating value for each and every […]

The Evolving Role of Patient Advocates

April 1, 2019

Patient advocacy groups have long had relationships with pharma, and now, individual patients are also sharing their voices and their power. While pharma has long had relationships with advocacy organizations, there is a growing wave of individual patients who are willing to speak up, be engaged, and provide insights to help the industry identify opportunities […]

Children on the Frontline: the Toll of Rare Diseases

April 1, 2019

Parents are the strongest advocates for their children suffering with rare diseases, pushing researchers, companies and regulatory authorities to do more to save their loved ones. For the 350 million people worldwide battling with a rare disease, the impact on their day-to-day lives is profound. This statistic is exponentially more poignant because half of these […]

Patient-Focused Drug Development

April 1, 2019

Biopharma companies and regulators are working to put the patient truly at the center of drug research and development. Empowered patients are redefining the healthcare environment on their own terms. Today, patients and advocates are playing a more central and proactive role in managing their own healthcare. This shift is reshaping traditional models of drug […]

Patients and Regulatory Support

April 1, 2019

Regulators are working to make sure patients have a seat at the clinical trial table. The Food and Drug Administration has been instrumental in the movement toward patient-centric clinical trial initiatives and driving these initiatives forward is the future of trial development. In recent years, the FDA has accelerated its public support of patient involvement […]

The Caregiver Gap

April 1, 2019

Caregivers are often an integral part of the care team and are involved in everything from medication choice to adherence. Caregivers are significant players in the healthcare ecosystem and, for many individuals, a necessary part of managing an illness or chronic condition. Caregivers provide an estimated $500 billion worth of free care annually — three […]

Patient Journeys

April 1, 2019

Putting the patient at the center requires understanding the whole person, not just his or her illness. Telling a patient’s story through his or her odyssey can be a powerful message. By all accounts, mapping a patient journey is never a straight line leading from point A to point B, and requires an understanding that […]

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