PharmaVOICE Blog Post

Real-World Studies Need Patients Too!

Posted By: Dan Limbach
November 16, 2017

In the November issue of The Evidence Forum, one of the informative articles covers patient engagement and retention, two key issues in clinical studies. We’ve all heard the buzz about patient-centricity. In this article, learn how a patient-centric approach can improve patient engagement and retention.

Here is a sample of what you will see in the article…

Despite some inherent challenges, there are numerous important and effective over-arching strategies for engagement and retention of patients in real-world studies that can be implemented without necessarily impacting the integrity and external validity of the observational data collected.

  • Consider the involvement of patients and/or caregivers in the study design process to better understand what may inspire patients to enroll, anticipate “pain points” for participants, and to inform the development or selection of study outcomes
  • Partner proactively with patient advocacy groups and other resources to
    • Inform study design and objectives
    • Align study with real-world, community-based resources that can provide information and support to patients and their families
  • Establish study e-forums or on-line communities for study patients to connect with each other and share Experiences
  • Consider employment of patient-centric on-line data entry platforms or “hubs” that integrate data collection with patient access to health and wellness links and other “connectivity” functions

Download the full article pdf at

Download the full issue with numerous articles at

Provided by Evidera

About the Blog Poster: Dan Limbach

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