April 2018

Letter from the Editor

April 1, 2018

Getting personal There’s a pretty good chance that everyone reading this special issue — Patients’ Voices — is either a patient, a caregiver to a patient, or knows someone who has been diagnosed with a chronic or acute condition. But just because we are all patients or know a patient doesn’t mean our or their […]

Upfront

April 1, 2018

Amicus Therapeutics Launches Healing Beyond Disease Amicus Therapeutics has launched Healing Beyond Disease, a global, employee-driven initiative inspired by people living with rare diseases and their families. Healing Beyond Disease is designed to enhance and expand the company’s support for patients, families, and advocacy organizations beyond the company’s research and development of novel medicines. Healing […]

HealthTech

April 1, 2018

Patient-Centered Apps Trend Watch: Pharma Increases Consumer-Facing Apps and Digital Tools Pfizer Launches Novel Programs To Put Important Support Services At The Fingertips Of Cancer Patients Pfizer has developed enhanced offerings to help patients manage their life with cancer. Pfizer Oncology Together is a first-of-its-kind program for patients taking Pfizer Oncology medicines that offers dedicated […]

Last Word

April 1, 2018

Acquisition and Integration Jane Griffiths, Ph.D., Global Head of Actelion, discusses the process of integration post acquisition by Johnson & Johnson in November 2017. PV: Why did J&J acquire Actelion? Griffiths: J&J had spotted Actelion several years prior to the acquisition because of its great science and products in a disease area of high unmet […]

Patients’ Voices

April 1, 2018

PharmaVOICE editors have been writing about patient-centricity and all this topic encompasses for what seems like a decade. Some say the term has lost meaning because of its ubiquituous use. We contend that patients are leading the way and influencing how businesses operate today. For sure, there is a still a long way to go, […]

Patient-Based Business Strategies

April 1, 2018

With patients taking center stage in discussions around new products, tools, and technologies, it’s not surprising to see so many companies moving the patient to the center of their operational business strategies, starting in the clinic all the way through to commercialization. Liz Lewis, chief counsel and head of patient advocacy at Takeda Oncology, says […]

Patients and Health Literacy

April 1, 2018

What people know about health and healthcare and what they do with that knowledge has a major impact on their health and well-being. When patients are given health information in a way they can understand, they tend to make better health decisions. Low health literacy, on the other hand, is a contributing factor to poor […]

Patient Journeys And Storytelling

April 1, 2018

Real life patient stories started seeping into the pharma lexicon well over a decade ago, on both a commercial and research level. The industry began turning to end users to discover how to create better drug delivery processes, clinical trial protocols, and marketing efforts, as well as to accurately understand the realities of the patient […]

Technology and Patient-Centric Trials

April 1, 2018

The term patient-centric is about ensuring the needs and perspectives of the patients are taken into consideration while maintaining scientific rigor for a clinical trial. Pharmaceutical sponsors have begun engaging patients in the trial design, seeking input and acknowledging the importance of this input in conducting a successful clinical trial. Patient-centricity can be enhanced through […]

The Changing Role of Patient Advocacy

April 1, 2018

The role of patient advocacy is a broad one — from supporter, to sponsor, to campaigner, to spokesperson and beyond. Indeed, patient advocacy means different things to different stakeholders, says Keri McDonough, senior team leader, Biosector 2, a Syneos Health company. “When patient advocacy groups talk about advocacy they typically mean systems-based activism at the […]

Patient-Centered Apps

April 1, 2018

The pharmaceutical industry is up against several challenges when it comes to developing mobile apps for its consumers. According to Deloitte, issues of consumer trust, app design, and regulatory concerns can throw up roadblocks in the very crowded and competitive field of 300,000-plus healthcare or fitness apps on the market. But that is no longer […]

Executive Perspective: The Lens of Health Psychology

April 1, 2018

As chronic illness continues to dominate the healthcare landscape, more and more people are being charged with taking active roles in managing their condition and treatment. Laura Moore, Ed.D., CHES, Lead Health Psychology Specialist at Atlantis Healthcare, believes the field of health psychology holds a key to unlocking the challenges of self-management for these individuals, […]

Speak Out

April 1, 2018

Prepare the market to be disrupted. Better yet, disrupt the market to prepare. Most marketers dream of having a product that is so innovative that it creates a huge disruption when it enters the market. Combine that with an edgy creative campaign, compelling data, and a big marketing budget, and it’s bound to be a […]

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